A lot of Autistic children and adults require a lot of care around the clock and mostly it’s their parents as parents fear the worse for their children.
I have relied on my mother and sister most of my life all the way up till I was in my early twenties.
When I realised that I was going to go in independent housing, I was terrified and scared, I knew that I wasn’t going to cope and it was going to be really difficult for me.
Shared accommodation with 24 support was great but I didn’t enjoy other people eating my food and drinking my milk. It was frustrating. I lived with two woman who never washed and if they did the bathroom was a mess and when I’d open the fridge freezer, I’d noticed half my food was gone and I’d get really upset. I was accused of many things I never did.
As a young child, I never wanted to be away from home or my parents, I didn’t like socialising and I was terrified of new changes.
As I got older, I observed people and their behaviour and slowly I learned from it and managed to adapt and adjust to the world, I learned how to curse at people when I was angry or frustrated, I learned how to look after myself whilst the house was empty, I managed to cope by myself but it’s still not enough as I still have care till this very day.
I was always a fast learner, if someone were to give me a brand new mobile phone, I’d learn how to use it within just 1 day. Telling the time has always been very difficult for me and I’ve only just figured out what it means when the hand is on a specific number.
I look at myself and how I am now and then I look back at who I was years ago. I didn’t even knew what emotions were and what they meant, I never understood my behaviour and it’s consequences until I became more aware of life and observed everything myself and it was then I finally understood everything.
When people see me on a bad day, they instantly think “This person is a nutcase” or “This kid is just trouble” but really I’m just confused, scared, frustrated, worried and want help.
This is why I created Autism Alliance UK because so many Autistic people have been poorly mistreated and been potrayed the wrong way. I want the world to understand us a bit better and be more patient with us.
Yes life as a security guard in a hospital or a support worker in a social care organisation is a stressful exhausting job but there’s no need for aggression or violence, grabbing someone and restraining without talking to them is very terrifying, it’s scary, it’s what you’d expect from a terrorist not a respected authority figure of the public. So many times I have been thrown into police cells for accusations for things I have not even done wrong. The justice system is corrupt and the social care services has no conscience.
How exactly should I explain to someone I have Asperger’s Syndrome? Should I wear a shirt with it written down? Should I take a letter confirming it around with me everywhere I go? Because that’s exactly how I feel in life. People think because you can speak up for yourself, because you’re aware of something, you don’t have any disabilities you’re just some spoiled brat.
I want to remove the stereotypes, I want to make people see and understand that there is more to this condition then what they expect. The public expectations are politically incorrect and everything that is happening right now is very prejudice.
How can we make this right?
It’s not exactly rocket science, you just have to have an open mind and a kind ear that’s willing to listen. If you don’t have that then what much hope do we have left of this?
I understand that working or dealing with an Autistic person can be challenging but with the right intentions and more motivation, it can get easier and that’s what most people don’t realise. You need to learn and understand and you don’t need a degree or to become a specialist to even do that.
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